Texas A&M student advocating for medical marijuana this legislative session
The goal is to expand the Compassion Use Program.
COLLEGE STATION, Texas (KBTX) - A Texas A&M University freshman is advocating during the 2021 legislative session for changes to the Compassion Use Program (CUP). CUP was passed in 2015 allowing the use of medical marijuana.
Julia Patterson is advocating with the KK125 Ovarian Cancer Research Foundation to expand CUP recommended insurance coverage for fertility preservation services for cancer patients who are young adults.
Patterson says her passion comes from how she’s benefited from using CBD oils that contain THC, an ingredient in marijuana.
“I was very aware of the stigma that surrounds CBD oil. This was an opportunity for hope and a chance that I could have a normal life. That was something I always wanted,” said Patterson.
Patterson was diagnosed with epilepsy when she was in kindergarten and would have nearly 200 seizures a day.
“Doctors tried everything. Every possible cure. I was placed on dozens of medications. I was on the Ketogenic diet for five years, multiple medical implants and I also had brain surgery,” said Patterson. “I lost out on a lot of life and I really struggled during that time.”
Patterson says since she started using CBD oil at 15, her seizures have stopped.
“I was the valedictorian of my graduating class. I was accepted into the University Honors Program at Texas A&M and I received my driver’s license, something I hoped for but never realistically expected,” said Patterson.
Patterson says she hopes sharing her story with lawmakers will create more opportunities for Texans.
“This medicine has given me the normal life that I have always wanted. So expanding access to hundreds of thousands of Texans that might need this and would benefit from it just makes sense to me,” said Patterson.
Full Press Release:
KK125 Ovarian Cancer Research Foundation announced today that Julia Patterson, 18, an epilepsy survivor and over three-year patient of medical marijuana, will serve the nonprofit organization as one of the youngest registered lobbyists in Texas for the 2021 legislative session, advocating for expansion of Texas’ Compassionate Use Program (CUP), insurance coverage of fertility preservation services for young adult cancer patients, and the freedom to share information related to “off-label” medication use.
Patterson, a native of Round Top, Texas, is a freshman at Texas A&M University in College Station. Suffering from intractable epilepsy since kindergarten, Patterson brings an informed perspective to her patient advocacy efforts.
“I was having more than 200 seizures a day,” Patterson recalls. “Drugs and implants left me in a fog, and it was hard to function. I couldn’t go to school, drive a car, or live a normal life. Everything changed when I was able to access the right medication — medical marijuana. Every Texan whose medical condition can be improved by a prescription for medical marijuana should have the ability to access it. The state shouldn’t place limits on who is entitled to compassion.”
Since beginning her medical marijuana treatment, Patterson has been almost seizure-free for three years, received her driver’s license, graduated as the valedictorian of her high school class, and was accepted into the University Honors Program at Texas A&M University.
Following the passage of the Compassionate Use Act in 2015, qualifying epileptic patients in Texas were able to obtain prescriptions for medical marijuana to treat seizures and other symptoms of epilepsy. Dr. Karen Keough, a board-certified pediatric neurologist who specializes in treating intractable epilepsy at Child Neurology Consultants of Austin and serves as Chief Medical Officer of Texas Original Compassionate Cultivation (TOCC), one of a small number of state-approved medical marijuana growers and dispensers in Texas, took advantage of the new law to prescribe medical marijuana for Patterson.
“When Julia started medical cannabis in January 2018 she had tried and failed many seizure medications, brain surgery and an epilepsy diet,” said Dr. Keough. “She still had major seizures a few times a year, and EEGs showed many electrical seizures happening every day without outward symptoms. After medical cannabis, her EEG completely normalized and she had no clinical seizures whatsoever for almost two years. She is now living the life she & her family have always dreamed of.”
Following her personal success with medical marijuana, at the age of sixteen, Patterson testified before the House Public Health Committee and Senate Health and Human Services Committee in support of expanding Texas’ Compassionate Use Program.
This year, Patterson will advocate for changes to the Compassionate Use Program in Texas to include:
- Removing restrictions on qualifying conditions: Put the power to prescribe life-changing medicine into doctors’ hands.
- Eliminating the THC cap: Optimizing cannabinoid levels for various symptoms will ensure more patients get the relief they need without suffering unnecessary side effects.
Patterson will also advocate on behalf of young cancer patients whose fertility is compromised by treatments such as chemotherapy, surgery, and radiation. The Medically Necessary Fertility Preservation Act will protect the option of biological parenthood for these patients by ensuring insurance coverage for fertility preservation services, such as egg and sperm banking, the high cost of which can sometimes be unaffordable to a person also facing a cancer battle.
“It’s understandably daunting when a person is diagnosed with cancer and simultaneously faces making life-altering decisions about whether they have the resources to preserve their ability to have a biological family in the future,” said Patterson. “There is usually a short window of time for a patient in this situation to make such a significant decision, and if we can alleviate the heaviness of the financial burden associated, we owe that to these young patients.”
This session, Patterson will also encourage lawmakers to adopt the Truth in Medicine Act that will allow the open sharing of information related to “off-label” use of medications in Texas. The federal Food and Drug Administration (FDA) is responsible for approving medications, but often a medicine approved for one purpose is also effective for treating other ailments. In fact, about one-fifth of prescriptions written annually are legally prescribed for purposes, patient populations, or dosages different from what the FDA originally approved. This is called an “off-label” use, and while it is entirely legal for doctors to prescribe medicines this way, the FDA largely forbids drug manufacturers from sharing truthful information about those “off-label” uses with doctors and insurance companies, which can affect treatment and coverage decisions.
“Full access to truthful healthcare information that could lead to promising treatment options is crucial, especially in treating patients with rare diseases or conditions,” said Patterson. “Texas can and should lift restrictions on pharmaceutical companies so that they can share fact-based ‘off-label’ use data —empowering doctors and patients to pursue personalized treatment options that show the most promise for each individual patient.”
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