Ryan is like all little boys. He loves, laughs, plays, and can be mischievous.
The 3-year-old from College Station has a great smile, and when he laughs it is infectious. He has no clue he is living with a condition that could end his life without warning.
His parents have decided they could not sit idly by and wait for things to change, so they formed a charity in their son’s name called Ryan's Challenge.
The latest goal for Ryan's family is to take a record-setting number of selfies with talk show hosts and television news reporters. The family paid a visit last week to KBTX to take photos with several members of the staff.
According to the National Institutes of Health, as many as 1 in every 250,000 people have this disorder and many do not know they have it until they experience a tragic event. Sometimes vEDS is not diagnosed until a person dies so no one truly knows how frequent this condition is. There is no known treatment or cure for vEDS.
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